Definition | A cancer registry is defined as a location, be it an office or institution, where collection, storage, analysis and interpretation of data on cancer patients take place (Jenson et al, 1991). |
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Objectives | - To measure cancer incidence - To describe cancer by time, place, persons and disease - To provide a national database for further epidemiological research |
Case definition | Target cases are: - Incident cases by year of diagnosis - Malignant tumors confirmed by histopathology and/or hematology findings - Cancers of all sites |
Sources of data | Data are collected through two main channels: the capture system (passive reporting) and the recapture system (active reporting). 1) The capture system: The capture system is based on physician’s routine reporting of cancer cases. Physician’s complete and send forms: - Directly from their clinic; or - Indirectly through the MOPH Drug Dispensing Center (DDC), where anti-cancer drugs are distributed to eligible patients 2) The recapture system: The recapture system is based on gathering information directly from histopathological and hematological laboratories. Data are collected in various ways, using hard or soft copies, or using database file or individual laboratory results depending on laboratories resources. This process is active since the NCR personnel actually contact the sites to obtain the necessary data. The recapture system validates and complements the capture approach. |
Medical coding | The coding of cancer primary sites and cancer morphology is done using International Classification of Diseases for Oncology, third edition (ICD-O-3). The code includes information on the topography (primary site), the histology, the behavior and the grade of the tumor. The structure is C##.# M####/##, where: - C##.# specifies the primary site - M#### specifies the histology - /## specifies the behavior and the grade of the tumor |
Reporting form | NCR reporting form |
Although the access to data related to epidemiological surveillance program including national cancer registry is public and is published on the Ministry of Public Health website, YET (1) To acknowledge the data source in the reference list with the following citation:“National Cancer registry, Epidemiological surveillance program, Lebanese Ministry of Public Health, www.moph.gov.lb”, and to specify the date of data publishing as indicated in the data set on the website. (2) To specify in the method section that secondary analysis was performed based on Lebanese Ministry of Public Health findings published on MOPH website. Example: "The data within this article is based on secondary analysis that is based on data published on Lebanese ministry of public health website" (3) To share any publications with MOPH that used our data sets to monitor bibliographic indicators, kindly send to esumoh@moph.gov.lb (4) To use the data for non-commercial, not-for-profit public health purposes only. |